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Paediatric epilepsy nurse service
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Offers help, support and information on all aspects of epilepsy to families and carers.
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Paediatric Epilepsy Department (QC261), Hydebrook House, Welwyn Garden City AL7 4HX
01438 288382
paediatricepilepsyservice.enh-tr@nhs.net
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Parent Network support and learning groups
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Bringing parents together by offering support and learning for parents caring for children and young people with any special education need, disability or condition. Offering support, signposting, information and focussed learning topics and access to specialist workshops as well as training for parents. Parent Network support & learning groups are run by Francine and Lesley with over 20 years of personal and professional experience. All Parent Networks are free for parents and there is no need to book, just pop in.
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www.familiesinfocus.co.uk has more information and details of parent courses
Email info@familiesinfocus.co.uk or call Lesley or Francine on 01442 219720
Closed facebook group: https://www.facebook.com/groups/184975381651870/
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| SPACE |
A support group for parent/carers of children and young people with Autistic Spectrum Disorder (ASD), Attention Deficit Hyperactivity Disorder (ADHD) and related conditions. Meets seven times a month in term time. Meetings are held in Bishop's Stortford, Buntingford, Cheshunt, Hatfield, Hertford, Hoddesdon, Ware and Welwyn
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| East Herts and area FASD Support Network |
Provides support for families with children with a Foetal Alcohol Spectrum Disorder. Support groups meet every month at Chauncy School in Ware. We have an FASD Club providing childcare.
Covers most of Hertfordshire and West Essex.
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Please visit https://ehertsfasd.wordpress.com for more information
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| PHAB |
PHAB stands for (PH) Physically Disabled, (AB) Able Bodied. Many members have different disabilities, but many of their siblings don't have a physical problem - our aim is to allow everyone to be involved. This helps young people learn about other disabilities and siblings don't feel they are always secondary to the disabled child.
PHAB organises school holiday activities
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Please visit http://www.spaceherts.org.uk for contact details and dates of meetings.
Helpline: 020 8667 9443
Email: info@phab.org.uk
Web: www.phab.org.uk
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Carers in Hertfordshire
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Support and information for all unpaid family carers and parent carers
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01992 586969
contact@carersinhers.org.ukwww.carersinherts.org.uk
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Family Lives
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Free confidential helpline for advice, information and support on any aspect of parenting and family life on 0808 800 2222
Monday - Friday 9am - 9pm
Saturday - Sunday 10am - 3pm
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www.familylives.org.uk
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Aspergers4Herts
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Supports children, adults and family members affected by Aspergers Syndrome living in Hertfordshire
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Here is the link www.aspergers4herts.org/news/ to their newsletter
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ADD-Vance
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Support and information for those involved with children who are affected by Autistic Spectrum Disorder (ASD or ADHD)
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Call 01727 833963
Email herts@add-vance.org
www.add-vance.org
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KIDS East HUB and
KIDS West HUB
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Information and support services for parents and carers of disabled children and young people across Hertfordshire
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KIDS West HUB – 01923 676549
hub.herts@kids.org.uk
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Watford Mencap
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A range of services for people with a learning disability, as well as their parents and carers
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www.watfordmencap.org.uk/
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Sibs
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For brothers and sisters of disabled children and adults
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www.sibs.org.uk
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Money Advice Unit
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For advice on benefits
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www.hertfordshire.gov.uk/benefits
01438 737555
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Up on Downs
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Hertfordshire Down's Syndrome support group. Up on Downs is a parent run organisation which supports families of children with Down's Syndrome. Visit the website for details of events and news
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enquiries.nhdowns@yahoo.co.uk
www.upondowns.com
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Phoenix Group for Deaf Children
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A charity that works with children and young people up to the age of 25 who have a hearing impairment
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www.phoenixgroup.org.uk
PO Box 283
Letchworth Garden City
SG6 3EG
01462 743744
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Spectrum Girls
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Social group for high functioning autistic/aspergers’ girls of all ages
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spectrumgirls@sky.com
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Hertfordshire Dyslexia Association
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Information, support and advice. Also training and support meetings
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Telephone 01727 867399
email michael.paterson@tiscali.co.uk
Website hertsdyslexia.co.uk/
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Dyspraxia Foundation
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Advice, information and support
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www.dyspraxiafoundation.org.uk/
Helpline: 01462 454 986 (10 am - 1 pm)
Mon - Fri
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National Association for Epilepsy
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Information, confidential helpline, written resources and emotional support
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www.epilepsynse.org.uk
01494 601400
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Young Epilepsy
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Information and support for parents and carers of children and young people affected by epilepsy
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Helpline: 01342 831342
Email: helpline@youngepilepsy.org.uk
Web: www.ncype.org.uk
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ROSHNI Asian Mothers Support Group
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Support for Asian mothers who have children with special needs in Watford and Three Rivers area
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matnadeem@hotmail.com
Maureen Mills 01923 470600
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Special Needs Parent Support Tring
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Support for parents of children with SEN in mainstream schools in Tring and district
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www.snpst.org.uk
01442 824462
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| Hope for Autism |
Support for parents and carers of children with Autism and Aspergers Syndrome
Meets second Tuesday each month in term time
Fleetville Junior School, Hatfield Road, St Albans
AL1 4LW
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Specific enquiries about the group -
Tel: Linda Faupel 01442 219981
Email: HopeForAutismWH@yahoo.co.uk
Web: www.hopeforautism.org |
| Challenging Behaviour Foundation |
A charity specialising in severe learning disabilities and behaviour described as challenging. Works with families and professionals supporting children and adults across the UK
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http://www.challengingbehaviour.org.uk/
Email: support@thecbf/org.uk
Telephone 01634 8381739
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| Watford coffee mornings |
Parents and carers of children and adults with Autistic Spectrum Disorders are invited to meet at the Cafe Nero, Watford High Street, from 10am-12 noon
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For more information please email jnputcha@hotmail.com
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| Swan UK |
SWAN UK (Syndromes Without A Name) is a project run by Genetic Alliance UK offering support and information to families of children with undiagnosed conditions
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http://www.geneticalliance.org.uk/
SWAN@geneticalliance.org.uk
Genetic Alliance UK
Unit 4D Leroy House
436 Essex Road
London
N1 3QP
020 7704 3141
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| YoungMinds |
YoungMinds is committed to improving the emotional wellbeing and mental health of children and young people
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Parents' helpline 0808 802 5544
www.youngminds.org.uk
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| Accessibility Guide |
The Accessibility Guide has been updated
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http://www.accessibleguide.co.uk/the-guide.html
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| Keys for disabled toilets |
Disabled toilet keys (sometimes called RADAR keys) can be bought online from Age UK – they cost under £2.50.
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Buy a disabled toilet key from Age UK
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SPOCAN
(Supporting Parents Of Children with Additional Needs)
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A support group run by parents, for parents and carers, professionals or anybody with experience or interest in living or working with children/young people who themselves live with conditions (diagnosed or not) such as Autism, Attention Deficit Hyperactivity Disorder (ADHD), Attention Deficit Disorder (ADD), Dyspraxia, Dyslexia, Oppositional Defiance Disorder (ODD) as well as others
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Contact: 07737 335289 or 07807 164075
info.spocan@gmail.com
www.spocan.org
First Wednesday of the month (excluding August) 6.30pm – 9pm
Churchfield Primary School, Cheshunt Wash, Cheshunt EN8 0LU
Last Friday of the month (term time) 1.30pm – 3pm
Hurst Drive Primary School, Hurst Drive, Waltham Cross EN8 8DH
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Tourettes Action
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Tourettes Action works in England, Wales and Northern Ireland and is a support and research charity for people with Tourette Syndrome and their families. It aims to help people with TS to receive the practical support and social acceptance they need to help them live their lives to the full
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www.tourettes-action.org.uk
Regional Development Coordinator, South-East
07725 819880
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One stop parenting directory
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The directory allows parents, carers and professionals to view parenting courses either by district or county wide. Other benefits will allow parents and carers to search the directory via keywords, see a map of provision, view expected outcomes of courses, see if crèche provision is available, any costs and the ability to add courses to a shortlist
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The directory is available at www.hertfordshire.gov.uk/parentingsupport If you would like to advertise your parenting course in the directory or have any comments or questions please contact fsc.team@hertfordshire,gov.uk
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Contact
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Information, advice and support for families of disabled children
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www.cafamily.org.uk
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